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Research and Data Requests
If
you are interested in other information that is not available on our
website, you must submit a completed data request form to
nlppp@easternhealth.ca or fax: (709)
777-4125. All requests are subject to our
Data Management Policies
document. Please allow for some time to process your request,
whether big or small. Some requests only take a few days where
others may take a few weeks.
All data requests for
research must include written approval from the following groups
before the request will be considered:
Memorial University's
Health Research Ethics Authority (HREA) - click
here
Eastern Health's Research
Proposal Approval Committee (RPAC) - click
here
In
conjunction with researchers, clinicians, and healthcare
professionals, the
NLPPP
carries out applied health research that is relevant
to perinatal health policy decision making. The research also provides information to
the public. If you are interested in finding more about what
projects we are working on or want to discuss the possibility of working on a
future research project related to perinatal health, feel free to
contact
us.
The NLPPP follows Eastern
Health's USE AND DISCLOSURE OF PERSONAL HEALTH INFORMATION FOR
RESEARCH policy - click
here.
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The NLPPP presently has
eleven fiscal years of data
within the
Perinatal Database
(2001/02 to 2011/12) with information (down to diagnosis and
intervention level) on mothers and babies born or transferred to the
Children's and Women's Health Program. As of April 2010, data
collection begun from the facilities of Western Health (Corner
Brook, Stephenville and Port Aux Basques) adding the total
provincial capture to 85%. The remaining regions of Eastern Health (ie,
Carbonear, Burin and Clarenville) have been capturing
delivery/newborn information since October 2007. In addition to the data being
collected from Labrador (since January 2005), collection is also
being done from the Grenfell portion (St. Anthony) of the
Labrador-Grenfell Health Authority. Capture of the
perinatal information from Central Health begun in August 2012. We also have over 15 years of
provincial data from the Follow-Up
Clinic Database with information on outcomes like vision or
hearing impairment, cerebral palsy, and developmental delay. Other
data sources in which the NLPPP maintains include:
NL Congenital Anomalies
Surveillance System (NLCASS) Database - the NLCASS Database is
currently under development in partnership with the Public Health
Agency of Canada (PHAC). The database will contain health
information on children in Newfoundland and Labrador who have been
diagnosed with congenital anomalies up to one year of age.
Information will come from the Provincial Perinatal Surveillance
Program (PPSP), Provincial Referral Clinics, Eastern Health
clinics/departments, and Vital Statistics. Data collection is
scheduled to begin January 2013.
Breastfeeding Database
- The Breastfeeding Database contains information on breastfeeding
rates at the time of neonatal screening under the Provincial
Neonatal Screening Program. The information has been collected since
1986. Additional breastfeeding information is captured in the
PPSP database and may provide a more reliable assessment of
breastfeeding rates.
Healthy Baby Club
Database - The Healthy Baby Club Database contains information
collected from participants in the Healthy Baby Club, a prenatal
nutrition support program offered by family resource centres to
women needing extra support during and after their pregnancy.
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Ongoing/Recent Research
Activities -
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Analysis of health
system data on caesarean births
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Examining cost of
diverting high risk pregnant mothers out of province for
delivery
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Looking at the
outcomes of term born neonates after episode of preterm labour
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Looking at maternal
and perinatal outcomes in Canada by mode of delivery
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Exploring outcomes of
babies born at less than 29 weeks
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Exploring regional
breastfeeding rates using surveys
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Examination of
non-breastfeeding mothers’ attitudes, beliefs and values
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Examination of
maternal grandmothers experiences and perceptions of infant
feeding
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Prediction of neonatal
cord arterial pH and neonatal outcome using intrapartum scalp pH
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Development of a
framework for a clinical and decision support partnership to
improve best practice
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Exploring glucose
control in pregnancy
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Examining maternal /
neonatal outcomes of women using Methadone in pregnancy
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Studying variations in
Methadone maintenance therapy and outcomes in perinatal centres
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Exploration of the
relationship between Vitamin D deficiency or insufficiency in
early pregnancy with maternal/fetal outcome
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Examining gestational
weight gain and BMI on maternal and neonatal outcomes
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Examining the effect
of gestational weight loss in obese women on maternal and
neonatal outcomes
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Examining attendance
of prenatal classes by first time mothers and pregnancy outcomes
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Examining how Neonatal
Resuscitation Program learning outcomes are affected by low
versus high fidelity simulation
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Examination of the
effect of increased health professional education on hospital
compliance with the ‘Ten Steps of the Baby Friendly Hospital
Initiative’
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Examination of
neonatal outcomes of maternal second hand smoke exposure during
pregnancy
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Innovations in
Patient Care: A Framework for a Clinical and Decision Support
Partnership to Improve Best Practice
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Should the use of
the Papile Classification of Cerebral Ultrasound Lesions be
Abandoned for the Prediction of Neurodevelopmental Outcomes in Very
Preterm Babies
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